Quote:
Originally Posted by daisy.girl
RW,
My migraine is gone....thank God! But the other symptoms continue. I am having my second infusion on Wednesday, but am afraid if I am truthful about new symptoms they won't give me the TY.
I saw my neuro last week, and told them about everything, and they told me it was common to have an increase in symptoms a week or so before your next infusion is due. So, I am not sure how to answer those questions??
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Daisy, this may reach you too late...I'm sorry I've been battling a double ear infection for so long I can't remember what it's like to not have my ears hurt.
If you tell them at the infusion center that your neuro knows about the symptoms and has consented to having you continue on Ty they will give you the meds. I know because my infusion center panics every time I tell them I have another infection and I'm taking antibiotics but, I have told them that my neuro wants me to have the infusion so they give it to me. I had infusion #42 last Friday...on antibiotics
hugs,
Shayna