I went to my primary care doctor who has been handling my pain management. i have been getting a fentanyl patch 50mg and methadone20mge twice a day. it barely takes away my pain. i have needed to go back to him once a month to get some percosett because i have had horrible flareups. at first he was understanding and compassionate. now im a bother to him and he is sending me to a pain mgt clinic. i have been to them before , but that was before i had a diagnosis. so i will be going to a hospital pain mgt clinic and they say they no how to work with RSD patients.

I am SO tired of being looked at like im a drug addict! Like this hell im in is a choice. i have RSD on my abdomen and i have 75lbs of swelling on me where i had 2 big surgeries and all my nerves were cut hip to hip. i am sad, mad, frustrated and just wish they were all educated on how to help rsd patients.

no ones situation is exactly the same! why dont they understand this?
if i knew of a doctor some where in the country that really knew how o treat this. i swear i would consider moving just so i could be treated properly.

i was trying to go on vacation for a few days and asked my doctor to fill my meds 4 days early...he acted like i was committing a crime. so he said no i would have to wait. well im going out of state and dont want to deal with a prescription for narcotics to try to get filled out of state. so my doctor said if they have a problem just have them call me. he went on to say that i am addicted to the pills maybe i should be off them. i said r u serious? of course im addicted, i have been on them for 5 years! yes i have built up a tolerence. yes i need more. its not like i am going to get well and the pain will go away!

So frustrating...ggrrrr i think i need a break from this illness! i wish i could wave a magic wand and take away all of everyones pain so you never have to get that look from your doctor like i got today!

peace to all sorry for ranting!
Lori

there has to be an easier way to live.