Mslee83
I am particularly interested in the description of muscle wasting and the fact you mention the bone sticking out in your back. . . Has your doctor looked at and felt your scapula? If it is sticking out, that would be known as winging. A winging scapula with joint clicking, tingling and twitches could be caused by something called Neuralgic Amyotrophy. The “amyotrophy” is the part of the name that accounts for muscle wasting. Generally, this is more common to just impact shoulders, but it can hit all plexus sites which would involve your legs, lower back, shoulders and possibly your ability to swallow and in more rare instances, your breathing.
Do you have any pain? Was there pain at an earlier time? In general, there is pain at least of some sort with Neuralgic Amyotrophy, but it is not a requirement for that diagnosis. The things you describe though could be associated with this
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Originally Posted by mslee83
Hi, this is the 1st time I am posting here. I have read a few forums that all have some things in common with my disorders. I am hoping to receive some help whether it be mental or physical. Back in April I went through some episodes of having a tingling sensation in my left foot that spread to my upper left thigh. After going to the dr's I was prescribed Ativan for the anxiety that the pain was causing me. Then after taking that for a few weeks, the prickly sensation returned with a vengence. The muscle twitching (wasting) and prickly sensation spread everywhere even to my groin and my head. So I was told on 3 different occasions to take Benedryl and/or Claritin. Naturally that didn't work. I've spent nearly $800 so far only to still be confused. I have seen every dr from Internal Medicine to Psychiatry. The other day I finally saw a neurologist who is sending me to have a head MRI and EMG/Nerve Test. I think this will be beneficial but I also have swollen lymph nodes for 3 months, my bones are popping all the time, the muscles are twitching constantly, and both my feet feel asleep a lot. I cannot afford to waste any more money on dr's who just want to get rid of me. Could all these symptoms be stemming from nerve damage?...or should I see a rheumatoid dr as well. My bones feel so brittle and I have lost mass around my shoulder so the bone is sticking out in my back. I am so worried because now my gag reflex is gone. Plz help!
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