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Old 03-11-2011, 11:06 PM
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peppermintpatty peppermintpatty is offline
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Join Date: Feb 2010
Location: Southern Coast of Virginia
Posts: 146
15 yr Member
peppermintpatty peppermintpatty is offline
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peppermintpatty's Avatar
 
Join Date: Feb 2010
Location: Southern Coast of Virginia
Posts: 146
15 yr Member
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Quote:
Originally Posted by ballerina View Post
Hi Peppermint patty,

Please share specifics. How long do you have to be there? Can you still take your current meds? Do they reimburse you for travel, etc?
Teri
Sorry I didn't respond sooner! Let's see....

Here's a quick blurb with some info:

Quote:
The admission criteria for this initial study have recently been amended to include patients who developed pain in one limb that has been diagnosed as having CRPS I or II for more than 2 weeks. Subjects are now being recruited for this outpatient, double blind, placebo-controlled cross-over study. The study requires 11-12 weeks with 3 or 4 short visits to the NIH Clinical Center. Eligible patients will be reimbursed for travel and other expenses, continue on their current medications as well as the experimental agents and will receive optimal medical care at no cost. The patient and/or the patient’s physician should contact the NIH at the address listed below. Upon completion of the study the patient’s physician will receive a report of the results of the study and recommendations for future treatment, as necessary.
For my first visit, I have to be there from 8a-2p. They will arrange flights and reimburse up to $20 for meals and $170/night for hotels. (Not sure how familiar you are with the DC area -- you'd be really pushed to try to eat for $20/day, but you could perhaps find a hotel for under $170/night, although taxes in the DC area can be pretty steep also.)

You can still take your current meds, I believe, except for narcotics, benzodiazepine, or Soma.

You'll take either the placebo or the drug for five weeks, then swap meds for a second five weeks.

That's as much as I have right now; awaiting more info.

Hope it helps.
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