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Old 02-28-2007, 05:25 PM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
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jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Default Something to think about

Chasmo,

I agree more of us should consider this surgery earlier. Last week I spoke to a neurologist about DBS - he had it done early (both sides) and is doing well. He is on no meds (just dbs...). And he recommends the surgery early in the disease because it reduces stress on the brain. But for people later on in the disease - dbs has also been shown to be extremely helpful for severe dystonia - as well as many other symptoms.

I will keep it in mind - truly. But for now I am waiting for a clinical trial. If I were eligible for CERE-120 phase II now, i'd already have contacted Ceregene to sign me up. But I'm not. So I'll bide my time and sign up for their phase III trial -- assuming all goes well with the phase II.
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.

Last edited by jeanb; 02-28-2007 at 05:33 PM. Reason: forgot something
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