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Old 02-28-2007, 07:47 PM
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vlhperry vlhperry is offline
Member aka Dianna Wood
 
Join Date: Oct 2006
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15 yr Member
vlhperry vlhperry is offline
Member aka Dianna Wood
vlhperry's Avatar
 
Join Date: Oct 2006
Posts: 736
15 yr Member
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Sorry, my neurologist only told me general details. I imagine if you do a search on "Rochester MN Mayo Clinic Neurology" you should get a link.

Charlie, I understand your enthiusm for DBS. I am also grateful for the technology as it saved my life. Please keep in mind that patients have to give themselves time to be educated and have some experience of living with PD. You must remember what Debrah Seltzer underwent by having DBS before knowing exactly what her diagnosis was. She was very educated. She also was left with unnecessary brain injury. She was very helpful in educating the Parkinson's community about the FDOPA Scan which most doctors would not educate patients about. The reason was the cost of the scan would not change the treatment for the patient. That is starting to change as neurologists are beginning to listen to patients.

Love,
Vicky
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