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Old 03-14-2011, 12:04 AM
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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Dana, I had cataract surgery January 2010. My other eye needs it now tho they wont do it yet because of inflamation in my face in part.

I was sure to do my mine in the winter as that is when I am my strongest due to the cold weather. The thing for me which was the biggest help was contacting the anesthesiologist directly and being sure she understood that I had MG and talk thru her plan getting a sense that she understood and was a good doc. She did a tremendous job!

I should add that I had records from my pulmonologist sent to this anesthesiologist. HE is the only person who gets the severity of my breathing. Not my family doc, not my neuro, none of the neuros I have ever seen would I have trusted to say and give the breathing data needed to get safely thru a surgery. The one neuro I respect the most that said neuros dont get pulmonology tests would have made sure a pulmo saw me not do a recomendation.

Doing the eyes a month apart sounds like too much to me. I know that this can be considered standard tho. I had a big flare only 6 weeks after the surgery. It IS surgery. I would not let a doc do 2 surgeries without thinking that that is alot for the body to handle and he could have a flare or heaven forbid a crisis if too much is done too fast. I was given steroids for the surgery so I know that may be part of why the flare occurred as I have gotten worse twice before when I had tried steroids. The flare hit 2 weeks after the end of the steroids.

Certainly age is a factor and how much his breathing is affected by MG. I am 60 now and can not sing nor have I been able to for a long time tho was better when the surgery was done.

Annie59
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"Thanks for this!" says:
DanaM327 (03-14-2011)