Quote:
Originally Posted by Smokey56
Chantelle,
I am a newbie today on this site as last week I was diagnosed with MS and still learning just what I am dealing with. Some great and comforting info on this site and I hope to contribute.
Last 3 or 4 years I had similar pains - it was center of sinus area to left ear and would come and go. Heat would trigger some of the time - my dr said sinus issues - so ate tons of meds with little help. I have fought allergies all my life so thought it made sense. Then the balance got so bad I would stumble and was miserable with face pain. My dr said I should see a shrink - huh, he thought I was faking! So, I changed Dr's and within 30 days new Dr ran a B12 test - came back I had very low levels that can cause a deadly version called Pernicious Anemia - I started shots and withing 2 weeks ( 1x a week ) my symptoms had just about vanished...
Now, got along good most of summer and last 2 months many other symptoms have surfaced which has led to MS diagnosis. However the face pain has been very minimal so I would check out the B12 test - simple low cost blood test and you might just get lucky as low B12 can cause symptoms very similar to MS and can cause permanent Neuro dmg...
There is a very good book called "Could it be B12" written by a California nurse - well worth the read...
Good Luck!
Randy
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Hi
Apologies for the delay.
Wow.. your going through an awful lot like i am along with the docs thinking i'm just a worrier and making it up or causing these symptoms to manifest.. i have been told to see a counseller too.. its frustrating
I finally got an appointment for an MRI which will be on the 20th of April. I will take your advice and get B12 checked next time i get tests done.. i'm due to get more done as i have high bilirubin. I do eat quite well and take vitamins but i guess it all depends on how the body absorbs etc.
I find that if i wash my hair or go for a walk or there is a breeze etc the symptoms come back with a bang.. its horrible.. earaches, glands go up headache, generally sensitivity also heat tends to affect me in a different way, its all so difficult. I'm wrecked the following day after doing something small the day before.. feel out of it, unbalanced, confused, severe fatigue, i do have many MS symptoms so we'll see what the scan reveals. I also seem to have muscular pain in the neck.. have you ever mooved or stretched and get a sudden like shock of electricity almost travel through your head, its agony.
Hope to hear back from you, how are you doing lately? and apologies for the delay
Chantelle