I realize that your last post is a few years old, but I thought I'd throw this out there . . .
If you're still suffering from myoclonus, have you tried Topamax and Clonazepam (only at bedtime) together? I used these to treat mine and they did a good job. Doc took me off a few weeks ago to see if underlying myoclonus was still same as baseline - it got worse and more frequent without these meds. Don't know where I'm going from here.
Good luck to you!
Carrie
Quote:
Originally Posted by DejaVu
Seems to help some with myoclonus!
I am going to keep trying this!
Thanks for this suggestion, MrsD! 
I also have a medium shawl made with dry rice in it.
It can go in the freezer or in the microwave,
I have always used this in the microwave... until recently!
The rice gets very, very cold when placed in the freezer!
It is convenient, as nothing melts... it all just warms up in time out of the freezer!
Going to try this a few different ways and will report back!
I was sticking with the clonazepam 4 mg/24 hours.
This, too, was really helping myoclonus; yet, I had found I was quickly losing cognitive abilities, have been extra sleepy, etc. I had cut that daily dose in half today and was still sound alseep for 4 hours mid-day! It seems it was having a bit of a cumulative effect. I hope to use less med and more ice/cooling.
~DejaVu |