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Magnate
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Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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Magnate
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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I visited an MS specialist last week, referred to him by my neurologist here. I'm set to go back this week for a blood test to look for the virus that causes PML. Last week, I had my 19th infusion and I've never been checked for the virus.
I've never had a reaction to the TY. If I am virus free-I want to stay on TY.
I've never heard of anyone getting TY every other month. I guess the doctors are trying out different things on different people. My neurologist mentioned at my last visit that studies suggest people on TY for two years should take a six-month break from it. I had never heard about that either.
The MS specialist was great. He spent 50 minutes with me, first going over my past MS history, then a complete neuro exam, then walking up and down the hallway without my Rollator and without Monty, my service dog. In April, he's set up an MRI of my brain, cervical spine, and thoracic spine with and without contrast, which sounds like we'll be there a very long time.
I had to be off Betaseron three months before I could start Tysabri.
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Mair
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