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Grand Magnate
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Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
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Grand Magnate
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
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We all seem to have computer access. On line getting e-mail addresses of goverment reps, etc. is fairly easy. I have sent e-mails to each. Found sending to president generates a general form reply, but sent anyway.
A new anti-miscarriage drug (a progesterone) that has gone from $10 to $1500!!!! by new Pharma Co. owner (no, they did not do research and don't need to cover cost - Makera (?) from Thera-RX). Ten doses are usually needed and is beyond reach of most without insurance. Their babies seem doomed to die. I asked in my e-mail if their own mothers knew what they were doing to others. I generated a form letter reply. My next e-mail expressed the old Wendy/old lady line "I don't think there's anyone back there". Of course I got no reply but if I made one person think for one moment maybe that's as good as it gets. It did help amuse me for the day Maybe one day you'll see me on TV chaining my wheelchair to White House fence.
Sally, I've been to FDA (pre-MS) when I worked for Medical Export/Import. Not impressed, suggest going to Capitol or White House.
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Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
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