Hi,

1. The way you describe it, you need treatment ASAP. you have unstable disease with respiratory symptoms+ sounds like you are still a bit in the denial phase. this can be dangerous. Also, the longer you wait, the less chance that you will fully respond to treatment.

2. I do hope you will go into remission with treatment (and many patients do, at least to some extent), but if not (and that happens too) you just have to learn to live with your changing abilities (and this takes time, but you do learn), and so do people around you (they never fully do, but they will to some extent).
you have to learn to explain it very "matter of factly" knowing that most will not fully understand any how.

3. As this illness (like many other relatively rare diseases) can make you feel quite lonely (even when you are surrounded by friends and family), it is good to talk to other people with MG. It really helps to know that you are not alone, and there are others that feel the same.