New Member
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Join Date: Mar 2011
Posts: 2
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New Member
Join Date: Mar 2011
Posts: 2
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Small Fiber Neuropathy
I have recently been diagnosed of SFN. After reading the posts of how you both are feeling, understandably why I feel the way I do. I am currently seeing a doctor who has never treated a person with my disorder before, and doctors who have, is about 6 hrs away. I started having these severe symptoms about a year ago. It started like Pseudo Siezures, with itchy, burning feet. They are cold and turning different colors. The leg and feet muscle contractions are extremely painful. I have progressed with symptoms rapidly. My feet are turning blue, constant stomach and bowel symptoms. I have the numbness, weakness, tingling sensations in my legs, feet, arms and hands. Now it is in my face and ear canals. I have a hard time swallowing when these symptoms occur. My body contracts with involuntary movements of twitching and spasms. I have dizziness, short term memory loss, and loss of concentration. Now I am constantly hot at night with sweating spells. Too young for menopause. HaHa. My doctor where I live has tested me for vitamin issues to MRI's. I feel like a test dummy. I was sent to a University Research Hospital where a neurologist saw me and in 2 hours diagnosed me with this condition. He sent me home with a referral to my primary doctor for pain management specialist and physical therapy. I have taken neurotin before and had bad reactions, now I am on Cymbolta and Norco. I have seen Acupuncturist, Therapists, Naturalists, and had no real results. You can't help but feel helpless. I was a very active person with my family and community. Now I am left to sit in a recliner catching up on Lifetime movies. I feel so frustrated, and sometimes very alone. I am hoping this will help by venting these frustrations. I do have a supportive husband, and family, but sometimes it isn't enough. They can empathize but cannot sympathize.
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