hi Karen,

delayed pain has been one of my worst symptoms with RSD. My RSD began with a torn rotator cuff and 2 repair surgeries. After any significant activity involving my arms, I typically develop intense migraines. i have also been diagnosed with occipital neuralgia because my RSD spread up into my head. the migraines cause flu-like symptoms and are a total nightmare!! ketamine infusions have been of enormous value. I tried just about every other treatment first.

I was never diagnosed or treated for TOS. But I have many of the symptoms. Just not the one where when you lift your hands up to the side of your head, they turn white, or something similar. Ain't so Bad Pete can tell you about that one if you are interested.

Good luck to you, I can totally relate to what you are experiencing!! xoxo Sandy