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Old 03-18-2011, 01:01 AM
sincerelykaren sincerelykaren is offline
New Member
 
Join Date: Mar 2011
Location: Oklahoma
Posts: 3
10 yr Member
sincerelykaren sincerelykaren is offline
New Member
 
Join Date: Mar 2011
Location: Oklahoma
Posts: 3
10 yr Member
Default TN symptoms

Quote:
Originally Posted by ch1984 View Post
Hi, I'm new here..

I haven't been diagnosed with anything as of yet and i'm so frustrated with going through whatever it is and trying to make sense of it all. I find the doctors of no help and waiting lists are so long.. here's my story i'd appreciate any advice or info..

Where to start.. I guess over 2 years ago is when things started getting quite intense.. all in all.. I have major pain and headaches consistently for over 3 weeks now, the frontal, maxillary sinus, a dull and sharp pain right across the eye brow around to the temple, and ears and cheeks. It can sometimes come from the back of my head around the ears..

It can feel like a pressure. Also slightly higher on the forehead if you went directly up from the end of eyebrow, my tears have stung me so badly for years, my vision has deteriorated from 20/20 to i'm not sure what but very dramatically and have astigmatism of the right eye.. my balance is gone, vertigo, if turn head too fast etc. (its better if turn whole body almost) i have been getting bad ear aches, a humming noise in my head, people saying i'm talking too loud or too quiet, i have a stuffy feeling in ears, also in the face like i've been punched around the maxillary area..

Another major point is that i cant be out in the air/cold for a few seconds before my ears start to hurt and glands feel like their going up.. even if have a shower and wash my hair my ears get sensitive, i feel like i'm getting a cold so easily.. its way too sensitive

I have TMJ symptoms, both sides of jaw click, my bite is a slightly off, i'm getting confused lately, poor concentration and also find it hard to walk/coordinate sometimes.. i have to think about it. I have a swimming pulsing/swaying sensation too.

My bottom 2 wisdom teeth have erupted but top 2 havent and are at a bad angle so wont come out regardless i dont think (thought i'd mention teeth in case, also need to finish a root canal) also my gums above my top teeth have this horrible feeling especially after eating something hot or cold.

Basically i'm feeling so rotten and hopeless and docs just say its the reminence of a flu i had in Dec but its been ongoing for years and really gotten a hold on me more so recently - since i had the flu..

Not sure if i left anything out but really hope to hear back from someone with any info or advice.. apologies for being scatty with info

Thanks

Chantelle
Chantelle: With TN, you have electrical shocking, sometimes you can't even touch a hair on your head, eyebrow, etc., brush teeth, eat, hardly ever smile, other pains that shoot in your face, the pains are indescribable almost. I was cured of TN after 15 years of one of the worst cases, but misdiagnosed in the beginning of my illness with TMJ. This happens often.

Dental work was when my pain started, but I do not believe it caused the illness. If you haven't had any pains such as electrical pain, brushing your hair, washing your face, smiling, etc., you sound like someone who has an illness other than TN. Trust me, I know where you are coming from. It is hard to find a doctor who identifies with you without thinking you are crazy and do not let anyone try to convince you that you are crazy.

Can you eat anything sour? Sour things trigger TN in some cases. With my TN, the cold wind made my face pain and shocking worse, however, I never had ear pain, but others might say different. I have heard of ear pain.

Please do not give up on looking for a good TMJ Dentist. Dental work can cause many problems, also. Nerve damage.

You seem to be describing somethiing different than TN pain. I had TN severely and because I had never heard of it, I was misdiagnosed as having TMJ. This is why I am suggesting TMJ problems. I had TN for years and was given a miracle by surgery and am now pain free.
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