Quote:
Originally Posted by catra121
Oh...I definitely know what you are talking about. My leg gets ice cold from the knee down on my left leg (RSD in my left ankle). To the point where when I was doing pool therapy the floor felt really cold to my right foot and HOT to my left...CRAZY! And I go through periods where I have this more often for longer, and other times where I don't have it for days at a time. But one thing I have noticed is that heat always helps the pain (even if just slightly). I often have my foot elevated with the space heater blowing directly on it. And I have a microwave heat pack that I can wrap around my ankle when I walk (if I can stand the weight of it).
It is definitely one of the stranger symptoms...I mentioned it to a bunch of docs before I finally got to the one who diagnosed me (all the others just said it was probably a circulations thing...morons). When I found out it was a key symptom for the diagnosis I was SO annoyed...
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I know how you feel about the doctors! I tried telling my orthopedic surgeon about the ice cold water sensation and he looked at me like I was crazy and just blew it off!
Quick question - the first summer after my symptoms got worse, I was in the sun, watching as my family was working in the yard. I have never experienced a sun burn, but for some odd reason the bad leg burned while my other leg got a nice healthy looking tan. My prim care doctor couldn't explain it, and even now (2 years later), it seems that the "burned leg" is darker yet shiny and the skin looks super thin on it (not to mention horrible in-grown hairs and the hair grows faster then I can tolerate it to be shaved). Was this an indication of the RSD that was missed by everyone?