Pinky, yes I have done the major cry. The cry that I have become afraid of because it will degrade my breathing. Once when my mom was hospitalized I had this strange silent cry because there was tears but my chest muslces wouldn't allow any noise. I can be going along and yes running into a rough patch and suddenly something on TV triggers it. I remind myself that there is a good chemical release with tears and be thankful for it.

I just went thru a piece of hating this disease because I cant do the kind of release I used to do easily. Things like cry, yell, sing loud, pound a pillow, heck even just a hard walk. I regret that I didnt know I needed to be thankful for basic things. I sure know that now.

The first year I felt much like you in that I didnt understand why I wasnt being offered information on how to cope, what ot expect. Something! It took me about 18 mo. to learn enough about what this was going to be for me to beable to have self care plan, tools.

I joined a group right away and they helped me have a sense of knowing and a place to turn when new things happened. I am so glad you came here. Welcome.

Annie59