Quote:
Originally Posted by Porkette
Hi Marciab,
Welcome to the forum. The long lasting seizure your discribed is known as a status seizure which means the seizure lasted for more than 15 min. this type of seizure can cause brain damage if they are not under control.
Just like you I've had petit mal (absence) seizures for over 30 yrs. and at one time I took klonopin to help control my seizures but it wasn't strong enough for me, I do remember that it made me very tired.
Lack of sleep, stress, chemical imbalances in the body, bright colors, loud sounds, drug and alcohol abuse along with genetics, or traumtic brain injury are the main things that trigger or start epilepsy. It can also happen from difficulty at birth.
I saw many neurologist over the yrs. and I didn't get that much help until I started going to an Epilepsy Center and seeing a Epileptologist (Dr. specializing in epilepsy) You can usually find an Epilepsy Center at a University Hospital.
After I saw my Epileptologist life got much better for me. I learned about taking vitamin B12 once a day to help calm the nerves, I had brain surgery to help reduce my seizures and I learned about the ketogenic diet which is a diet high in fat but low in carbs and starch foods that will help reduce or stop a persons seizures.
You can also have a DNA test done to find out what meds would help you with your seizures and have the least side effect.
If I may ask do you use a cell phone? If you do be very careful because this can cause more chemical and neurology problems which can lead to more severe seizures.
I found this out from my Epileptologist because at my job a lot of staff were using cell phones and when I was near them it would cause me to go into a seizure.
This is known as being cell phone sensitive and there's nothing that can be done about it. I wish you the best of luck and May God Bless You!
Sue
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Hi Sue,
Thanks for replying ... I still have to look up status seizure. But the part about brain damage is concerning, of course. With all my neuro problems I'm sure that I already have some . Not that I wanted to add to it ...
That's interesting that you were taking Klonopin to control petite mals. I can't believe I didn't think of that myself ... duh ... or at least try taking Theanine.
I'm on .5 mg of Klonopin for sleep now but I'm not sure what the neurologist I see will recommend. I have to say though, I'm sleeping like a log and waking up feeling energized.
Funny you should mention difficulty at birth. I was born with the cord wrapped around my neck and my mother always attributed my neuro problems (blackouts and spaceyness) to this ... My background better fits that of someone who's been intolerant to gluten their whole life. And IMHO this seizure reflected just how sensitive I am ...
The day of that seizure I'd only had 4 hours of sleep due to allergies. I was also taking Claritin, Benadryl and Nasalcrom more regularly than I ever had. The Claritin and Benadryl make me feel loopy so normally I avoid those but I had to have them ... THe Nasalcrom didn't affect my brain and seemed to work the best. I've tried that again and seem to be ok ...
If I'm not satisfied with this doc I'll move on to seeing an specialist. Thanks for the tip ...
I'm on B12 . in fact, my numbers are over 1000 now. Have you heard of adenosyl B12 ? I think it's helping my muscles function better.
"I had brain surgery to help reduce my seizures" .. I may be asking you about this later so if you get the chance can you point me in the right direction here.
I'm on the Paleo diet but couldn't do the ketogenic ... bleh ... the oils killed me .. but I'm missing a gall bladder ... are you on the ketogenic diet ? FWIW .. I always thought this helped some people because it eliminated gluten. I can see how fats play a role in this too though. I take fish oil and eat plenty of other healthy fats but I'm paying more attention to this now.
I want to look at the DNA testing too ... you certainly have given me a lot of great info ... thanks again ...
I do use a cell phone. In fact I gave up my home phone about 4 years ago and just use one now ... I don't seem to react to it though.
thanks again ... have a great day ... Marcia