I think we all should take this letter to our doctors too so they really get an idea of what our lives may be like!

When i tell my doctor that my quality of life is very poor, i know he does ot get the whole picture. this really paints it well.

I am also thinking of emailing it to friendships that i have lost along the way to this illness. I use to be a business networking machine and when i got ill i couldnt go to meetings anymore...those relationships just went away...i missed the interaction with other business people. i find myself living in the past in my head...saying "I wish my life was like it use to be" i am very disabled from this and am mostly in bed because of it. just going to my car to take a drive takes much effort. people just dont understand.
Praying for a cure!
Lori