Quote:
Originally Posted by HurtsBad
After being diagnosed a month ago with RSD pain the past two weeks has reached new indescribable levels. I currently take Vicoden ES and Lyrica 75. The Lyrica gave me some relief with the burning for about the first 3 days, however its no longer effective. When the pain is so bad I have no relief from the Vicden. On my "good" days the Vicoden makes the pain tolerable (but "good" days are rare). I knew that the RSD was progressive but, I didn't think it was going to progress this quickly. I go back to the nerve specialist/ pain management this week, thank god! I really hope that there are different meds he can put me on so I can have some relief. I also know that we are going to talk about nerve blocks if both of us were not happy with the results of pain management therapies and PT regimen we tried. I also think that the RSD is already crawling up my leg. It started out lower right leg, ankle and foot but the pain is up to mid thing now. I have no burning in the thigh (yet) just the excruciating pain with tingling.
Has anyone else had this pain escalate so quickly and crawl up the extremity this quickly? It's gone from bad to worse in a matter of a month, and worse to unbearable within the last two weeks.
Wishing everyone a pain free day!
HurtsBad (Amy)
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I'm sorry you are in such pain. If you were diagnosed a month ago, how long have you had RSD? If it's relatively recent and you are getting the right treatment, you may actually have a pretty good prognosis. I was treated within about 6 weeks of onset, and while it initially seemed to spread up my leg (quickly), eventually the whole thing went into remission. It took about 1 1/2 years for the pain to completely go away, but I did have very aggressive treatments from the beginning of my diagnosis. I'd be happy to share what I tried (it's a rather long list). Please try not to worry about it spreading, as the fear of that happening can make your pain worse. Ask your doctor what else you can try. Maybe Lidoderm patches, Ketamine/baclofen cream, different meds (neurontin?), nerve blocks, TENS unit, biofeedback, mirror therapy. Whatever can make your pain manageable so you can do PT (maybe aqua-therapy?) The more you can use your limb the less likelihood of it spreading. I also used to play a lot of "mind games" with myself--I would try to focus more on the limb (or other parts of my body) that DIDN'T hurt. It can be a long road, but even if it seems to be spreading now it can get better.