Quote:
Originally Posted by Sonny1
Well I am home from my appointment this morning. I was a nervous wreck knowing we had to discuss the stellate ganglion block, which I agreed to for April 4th. YIKES!!
I fell a bit weird with this doctor. She seems to have this attitude of "suck it up and get over it". I explained that I could not take the Lyrica due to it making my vision very blurred and her response was "you are just going to have to push through things".......HELLO, I need to see. She continued with "every medication has side effects and you just cannot stop taking them because they make your vision blurred or they make you throw up etc" I'm thinking, I am trying to relieve pain not add it. So I agreed to go back on neurontin and "deal" with the exhaustion it caused me, at least I will be able to see!
OK, now that I freaked out, I do have an actual question. In doctor's report it states "The patient has symptoms which could fall in the diagnosis of CRPS-1." Is there ever a definitive diagnosis? or is it just wait and see if more symptoms appear? I am lost. My last visit she said you have CRPS, so here I am thinking i am going crazy~  |
It took me ten yrs of searching to find a doctor to give my daugther a diagnoses. All of the doctors said it was in her head or just said it was fibromyalgia. One doctor even diagnosed her with fibromyalgia without even turning around to look at her. She is 18 yrs old and has full body CRPS. She just completed her first ketamine infusion. She did get some good results from it. The CRPS is not gone but is better. She tried Lycria and did not do well with it. First of all it did not help anything. Then we she was trying to stop it, she was unable to sleep. It took at least a month to get her sleeping again. So be carefull. Good luck...