Thread: MMN with CB
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Old 03-22-2011, 02:45 PM
Edfe Edfe is offline
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Join Date: Mar 2011
Location: Eastside of Seattle Area
Posts: 3
10 yr Member
Edfe Edfe is offline
New Member
 
Join Date: Mar 2011
Location: Eastside of Seattle Area
Posts: 3
10 yr Member
Default Treated for MMN with conduction block over the last 3 years

Before the IVIG (which for some reason did not work the first time; dosage too low we think) I was unable to use my left hand and had lost much of the right hand. I had lost 60% of the muscle mass on the left arm and 40% on the right. My legs had started to have some problems as well.

I have now been on IVIG for at least the last (3) three years and have have all of my muscle mass back, and hardly any control issues. Over the last year I have lost 76lbs with no change in my lifestyle.

Life has greatly improved for me.

I still have a ways to go before I reach the max dosage you can have and expect based on my current progress to be ok for the next 10 years.

Take care folks
Ed
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