Thanks for all the info. I really appreciate it. It is very encouraging.
I had my appt at UCSF today with Dr. Conte vascular surgeon and thanks to my scalenectomies I am not showing any vascular symptoms anymore but he felt I was showing neurological symptoms maybe because of scar tissue ( or who knows?) and they recommended I try out the Peter Edgelow. I am going to him next wed. It's seems like it's going to be a long journey, but I am ready to take it on.
They gave me the example of one of UCSF's own Rheumatologist who elected not to to have TOS surgery(rib resection). It took him 2 years while following the Edgelow protocol to get all better and now he plays Tennis regularly. That's giving me hope !
Thanks for all your support and input and good luck to all of you as well on your road to being well again.