Senior Member
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Senior Member
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Oh Ali...you have really had a rough time of it lately. I'm so, so sorry.
You can't give up. Please...you are an inspiration to so many of us. I hope your Mom will persist in getting you to another doctor that has more compassion.
BTW- if you already have RSD in your back, why can't you get the pump? most who have the surgery experience spread to their backs after it's been implanted. You definitely need a better doctor! one of my RSD friends just had a pump done, please let me know if you would like his contact info...(and he has RSD in his back! - and his legs, and arms, etc..)
Ketamine is also a great treatment when nothing else has worked. There are countries near you where it is available - notably, Germany. The treatments can be real expensive here in the US. But check out Europe which is closer to you and probably cheaper.
please, please keep searching for the right treatment for you. And keep in touch because we all care..much love, Sandy
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