Hi Ellen, I am fairly sure there is myositis in my body. I new current neuro said the words that did I consider that I may have polymyositis. He said it would take a biopsy to be sure. Did you have one or how was it confirmed. Oh wait you said dermomy so that may not need one.

I am just quickly checking in here as I am in recovery mode. Worse from the long trip to new eye specialist. Will post on that good news separately.

My breathing is really bad. To find a pulmo that gets myasthenia affects is hard. Are they sure about the copd and asthma? I have an angel of a pulmonologist and saw a good one at Mayo Clinic who did a sniff xray on me that proved half of my diaphragm is paralyzed already. If not for him at Mayo my case was about to get dropped again cause I got a nasty neuro up there that doesnt believe in seronegative MG. He wrote a letter saying she should have sent me back to him for more and wrote a very good over view of what he did she which neuro had dismissed.

We can talk more later if you like. I have another doc appointment tomorrow and a new crisis have arisen but I will try to get back here.

Annie59