Hi Faye,
Welcome, I have ALS but I read and follow your posts with great interest on Care Cure. You are a true warrior advocate and I truly believe that Kerr's and Kerstead's research as well as a few other's will benefit both ALS and SCI.
Also contact the MGH ALS Clinic
http://www.massgeneral.org/pubaffair...6ALSclinic.htm contact Matt Bellanich, NP, at (617) 726-8741.
Good luck!