Abby, I am glad you spoke of this. The part of feeling like not doing anything. I struggle with this. AS I wrote swallow test today I did far far more than usual these past days. It came to me that I wondered if I was even being a somewaht self distructive out of frustration, anger and pushed beyond what I know is safe for me and my breathing , maybe my whole body.

The other side of the coin is that down time I generally know has to be factored. But are there points that I am just throwing in the towel with appointments that are badly needed (my teeth are a big big one) and backlog of laundry, a shower that I am just giving up cause I am so weary, sad that this is my life and the complication level itself is exhausting.

I would be interested in what your person says about this if you are comfortable to share it.

Annie59


She is helpful to me. I am going to ask her to help me figure out how to deal with periods of low energy where I just don't feel like doing anything, even things that don't require muscle strength--it's those periods that really get me down.

Abby[/QUOTE]