Quote:
Originally Posted by jeffburns
hi, have rsd since 6/26/2006.i am in pain most all the time and i do not no if i can take it any longer.i try to be happy and not in a bad mood but it is getting very hard.i try to talk to my wife about it but i don,t think she understands.i wish i had someone to talk to who has rsd so thay can relate. thanks for letting me vent.
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Hi jeff,
Sorry to that you are in so much pain but on the good side you seem to have a positive attitude. This is a wonderful site for friendship and great information about RSD.
Are you with a PM Doctor for treatment? Where is your RSD mainly located? I'm right side upper extremety and have been under control, I don't want to say remission, for a good 3 years now. I still deal with a slight amount of pain,functioning issues and on occassion a flare which can still get hectic, but I have come from nothing to pretty good at this point. I also have PN which is in the same area.
Having a good team of doctors for me was key. I have had a ton of treatements including ketamine which I think works but don't like the side effects at all. I actually think it was the main thing that help the major symtoms of RSD. For me was of course pain in my arm, migraines which I never had in my life before this all happened, the burnign pain which is the worse, and the sensativaty. Which honestly at this point I really don't get any of it any more, it has to be a really blue moon/flare for this all to come back. I can't even remember the last time I had a mirgraine. Believe be I went throught hell from 2003 - 2008. Now I just see my PM for maintenance of medication which I am on almost nothing and a occassional epidural if things seem to get bad.
Nice to meet you.
Gabbycakes