Quote:
Originally Posted by daylilyfan
Have you tried topamax? It has helped me with my overall RSD symptoms more than other meds, even more than pain meds. I cannot tolerate neurontin or lyrica. But, I have to take topomax at higher levels to help headaches. I take 400 mgs a day. I used to have migraines years ago. They affected me intestinally mostly...severe vomiting and diarrhea.. The headaches and aura were bad but tolerable. My RSD is severe in my upper back, neck, back of my head and side of my face. I had a 7 on scale of 10 headache from it for the last 3 years 24/7/365. Nothing took care of it. Nothing. When the neurologist increased my topamax from 200 to 400 a couple months ago, the headache dropped to a 2 or 3. There are times now I don't even notice it.
Topamax has side effects. It can mess with your use of words. You have to drink lots of water to avoid kidney problems. It causes hair loss in some. I no longer work, so the word issue does not matter. For me, it is a great med. Far less problems than I had on oxy or methadone. Every med has some problem or other.
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How weird that you mention Topamax! I was just reading something on line about it this morning. No, I have not tried it, never even heard of it before this morning. I had reactions to Lyrica also. I am trying neurontin for the 2nd time and i only take 300 mg once @ bedtime and I am so exhausted the next day...I cannot stand to take it. I also take 120 mg of Cymbalta which is useless. I do not take narcotics because i am super sensitive to a lot of med's and don't like the weird feelings they give me. Who prescribes topamax for you? I guess i would have to ask my pain Dr.? my hand surgeon is the one who put me on Cymbalta....who knows!
I read that topamax has a high rate of weight loss? That wouldn't be a problem for me...as i could use some serious loss! I understand that everybody has different side effects, if any. So trial & error is the best way to see. If it helps with RSD/CRPS and migraines, that beats taking 10 different medication's.
