Lori,
I think it was here that I read that methadone and fentanol don't mix?
If the fentanol isn't helping why take it, this is powerful medicine and the side effects can be deadly.
I don't like to hear you fooling around with extracts either.

What you need is a good neurologist who KNOWS RSD!
I cringe when I hear pain management docs.

I think, that this is your first highest priority, to find a good, experienced rsd doctor, usually a neurologist. Try a University hospital nearby or in the nearest city, call the Chief of Neurology!! Don't fool around, start at the top!
I wish you the best.
Also,, I don't know of a time, that I'm completely pain free, or, even close.

Take good care, by getting good care!

Pete