Quote:
Originally Posted by SandyRI
So sorry Jeff. You can always come here and talk to us. Its really hard for anyone else to understand what we are going through. Scroll through the old posts and you will find lots of helpful information in regards to meds, docs and treatments. Many times just getting your pain under control can really help you get to a better place emotionally.
the RSDSA website has links to lots of RSD support groups across the country.
Go to RSDS.org.
Good luck, Sandy
|
Hello Jeffburn,
I want to welcome you here and say that I am truly sorry for your RSD.... We can all understand here how desperate you are...It is soothing to our soul to shout out and ask questions and we each know the cry for help...RSD is no doubt an ugly animal... An animal the is hard to live and reckon with..it is a daily hurtle to live and stay positive with it. I can relate to your day of your Dx as I too was given my DX on 6/26... Only in 2007.... AND that is my birthday also... it's ok as I can remember my DX. Date pretty easily as on my birthday each year since...I can mark the ugly anniversary of my friend..RSD...Diagnosis is very important, early the better for any kind of remission, so I guess it's good, I at least know what is wrong with me ... no remission for me either..24/7 gut wrentching pain.. I am unable to take meds due to a very sensitive tummy and can't get Ketamine approved so I just look in my heart all of the time to look for something happy to help over ride my pain...
I wish you well...you have just made new friends here...Please, lean on us as we understand what you are going thru..everything!!!!
Hugs, Kathy