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Old 03-28-2011, 09:50 AM
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JoanB JoanB is offline
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Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
JoanB JoanB is offline
Member
JoanB's Avatar
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
15 yr Member
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They asked me if I ever have leakage accidents and I said that I do every once in a while (maybe a minor leak once a month or so), but that's not why I'm there. I'm there according to the neuro for the PN pain, loss of leg function and loss of balance.

They gave me the Kegel exercises, and yes, you're right, anyone can do those at home. Actually, there's hardly any of the general PT stuff I can't or don't do at home (and don't see a bit of improvement).

They also keep putting "lumbago" and "back pain" on all my forms, which I'm sure is just so they can con the insurance companies because I betcha dollars to donuts that insurance doesn't pay for any of this for a DX of PN.

I hate it that they can get away with all of this nonsense and because:

  1. It's humilating.
  2. I have to put up with it or else get labeled in their database forever.
  3. This healthcare could be going to someone who could benefit from it, but it isn't because they don't have the coverage that I do.
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PPMS Rx 2013, symptoms since 2000

Last edited by JoanB; 03-28-2011 at 10:07 AM.
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"Thanks for this!" says:
Jomar (03-28-2011)