Hi Josepentia -
Thanks so much for the heads up. Eric's is definitely venous because he has a specific genetic abnormality of the sub-clavicilar vein (it is very thin in one area). They discovered that last July and placed the stent in that very spot. In fact, the surgeon showed me the pictures (which was nice). The only reason this surgeon brought up the rib removal was IF the stent showed that it was being compressed/comprimised we would go that route. In fact my son said that they had done some testing with his arm at that angle. At least this guy seems to cover most bases. What is next for you at this juncture?
Scott
Quote:
Originally Posted by josepentia
Scott,
I'm happy to hear that your son passed the venogram and that he is able to come off of the anti-coagulants. However, there is a possibility that your son may have arterial TOS- not a great possibility but one non the less. I have similar symptoms to your son (do a search for my name- also in introductions) and have been DX'd with ATOS. I passed my venogram with flying colors in 08. But failed miserably in the TOS positional doppler/ultrasound a few weeks ago- confirming that my left subclavian artery is severely compressed when my arm is above 90 degrees. Limiting all blood flow.
Please seek further consultation/testing to confirm/deny ATOS. I different Surgeon from the one I saw in 08 found that it was ATOS instead of possible VTOS.
Hope this helps, please feel free to PM me with questions,
Jocelyn
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