Hello All. I am new here and I am looking for all you fellow Tysabri users. I live in Germany (husband was transferred for work 20 months ago) so I am looking for some English support. Do not know many people that have been on Tysabri as long as I have. I love it, no reactions, and I have been stable for over 4 years.
yesteray was #54 and it took 6 times to find a vein. It freaked me out. I already have a hard time when I have to go to the hospital to test for blood. They always have to go to a few veins to get more than one vial to test from me.
My doctor here said I should start looking into Fingolimod the oral medication since I am having issues. So again stressing me out! Change medicine in another country.
The doctor that I go to only does the vein in the arms, no the hand. On the 6th attempt they sent me to a different practice to have the doctor put the needle in my hand and then I walked back to my doctors office and had my medicine.
How long can we safely stay on Tysabri? So many questions!!!
Thanks!!