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Old 03-29-2011, 05:19 PM
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(Broken Wings) (Broken Wings) is offline
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Join Date: Jul 2007
Location: Kentucky
Posts: 1,614
15 yr Member
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Quote:
Originally Posted by dsikma@msn.com View Post
I am now coming up on 9 weeks post TOS surgery. My right side of my face is still numb, as well as my neck, chest, back of arm and hand, not to mention the continued pain. This has been the most horrible thing I have ever done! I am still praying for recovery. I would love any input.
Nine weeks is a while, but not like nine years, either.

If you haven't started a log/diary of your pain level at various times of the day, along with describing the pain at that time, meds, food, stressors, progress, regression, exercises, if any, then I suggest you do.

also phone calls regarding your problems here. get the name, date and time. there are many tests in your future. it will take a while.

Have you tried relaxation and deep/belly breathing techniques. They are a great starting point. Jo*mar has good links for that.

You must start to recognize what is irritating your symptoms, or are you just constantly tournmented? probably the latter. So sorry you're having these problems It'll be okay.

You're going to need help figuring out what you can do with our activities of daily living, like a hairdryer on a stand. Boy, did that save the millisecond - a day has never come that I'm completely painfree. so baby steps right now.

Soft seemed to be better for me. Oversized tennis balls to prop my arms and neck and shoulders, back, butt, leg, hip, .... very helpful. You can get them in the sporting goods dept or pet stores somes has perfect balls for TRIGGER POINT therapy. Lots of info here on TRIGGER POINT THERAPY

You will have to do what you have to do right now just to get through the days. If it's heavy pain meds, Neurontin, which helped me but has some unsettling side effects. I'm not comfortable taking that doing as well as I am today. There's also Lyrica to check on, to see if it may help the neuro thing going on.

Learning how and when to medicate is another must. Like, don't take Celebrex and Tylenols or Advils together. Inhale water for your stomach and your liver and lymphatic systems.

I slept in a nest for eight years. I had lots of them around the house, too.

Healthcare providers are hard to come by for treating TOS patients.

You're surgically altered, so be very careful who you let work on you.

It could be that your nerves are VERY IRRITATED right now, and for a good reason. But nine weeks with these numbness sensations and other things, you need to get another opinion or two, I think. It takes a while to get in for an appointment, so I'd start now.

You must insist sometimes if you're not being heard.

Here is a link I wrote about three years ago. http://neurotalk.psychcentral.com/thread60797.html

Don't take on so many new things at once. You won't be able to tell which one is helping. Good thing to note in the log, when you start something and plot its benefits. I graded things as positive or negative. That helped me make most of my decisions.

Like it or not, you have to learn about these things. The more informed and knowledgeable, the better your recovery.

I did find comfort in knowing that my arms were not going to explode ODD! ! !

I also used to say, "I wish I could chew them off or shoot them off", and I wasn't joking.

It is bad to find yourself in a place like that, my friend.

Keep us posted and ask questions. ASK AND ASK AGAIN IF YOU DON'T GET A COMFORTABLE ANSWER...

Here's a hug for you we understand
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"Thanks for this!" says:
dsikma@msn.com (04-08-2011)