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Old 03-29-2011, 05:23 PM
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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I asked my daughter to ck in in the morning and if I am still this bad she needs to call the neuro. Since he now has tthe new eye specialist confirming MG I am hoping he will do the neostigmine/atropine injection that was this mini cure to me when the university did it. It was equal to 60mg of mestinon and I handled it fine with the atropine to counter the stomach and bowel stimluation.

I guess I have to stop just saying I get diareah. I get horrificcally painful, cramping, sit on the toilet and pray I dont faint diareah. And with that I would vomit and not just a little but repeatedly and hard. What it does to nerves/muscles in the rest of my body it way over does in my stomach and bowels. That gets better when my vitamin D/parathyroid starts to become more normal. Like today taking that 12mg dose. I couldnt have done that last week when the vit D/parthyroid were worse. After getting it Sunday with fluids I am doing better in that area at least.

I know this has something to do with vit D issue as when I first took mestinon I didnt have this. If my pancreatis is sick or liver or whatever and it gets fixed hopefully my tolerance for mestinon with improve along with my other meds and foods and all.

On my breathing again I havent been this bad since last October. Usually I recover during the nite and from rest. This today isnt normal. I am trying to get as much mestinon in me today as possible. I broke my routine yesterday besides being busier and forgot myacupuncture. That is a big deal for me. I am over due to go to my doc and get a full on from him too. So my daily smaller treatment is more imprtant.

Annie59

Quote:
Originally Posted by EllenW View Post
Annie I am so sorry to hear that you're not feeling ay better. I can relate. My breathing is really bad also. But the pred doesn't help my breathing very much anymore. I also have chronic diahrreah. I take Imodium. Over the counter. Can't go out unless I take that and even then, I have to know where the bathrooms are wherever I go. Mostly I stay home. And now that I'm on methotrexate as well, I also feel nausea and my diahrreah is worse. Ugh! Be strong. Hopefully you'll turn the corner soon.
Ellen
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