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Old 03-29-2011, 10:03 PM
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
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Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
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Hi

I have a suggestion. Why not ask your neuro if you can switch the Tysabri to every 6 weeks or 7 weeks or 8 weeks? I started getting a UTI with every infusion starting with #14. I was miserable and constantly on antibiotics. At #18 I switched to every 8 weeks and I stopped getting UTIs! And the Tysabri is still working. Now granted week 8 I see little things starting to creep back (like blurry vision) BUT my MRI's are still good--no new lesions or enhancing ones. Once I went with a 7 week break since I was out of town. It's worth trying before having to switch to the crappy injections or the relatively untested Gilenya.

Good luck!

Natalie
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Dejibo (03-30-2011), Lady (03-29-2011), SallyC (03-29-2011)