Thankfully my pulmonogist has been able to make up his own mind tho after on the worst docs he did say maybe we better reasess. FOrtunately I said did you get my note to do a test with the mestinon for my breathing lab tests. He had and said lets do it. I had not taken any mestinon for at least that morn maybe more. He had done that testing as I have to have a retest every time I see him. It proved that I had an enormous boost even on just 30mg in my results. He has been for square on my side ever since.
Also the eye movement specialist who is also a surgeon did the same thing in that he read some of what I brought and was sent to him by my local office but made up his mind.
Annie59
Quote:
Originally Posted by rach73
I was just checking in and saw your post.
I think some consultants / specialists won't believe another Dr's diagnosis unless their tests confirm it. I can understand them not taking things on face value but it seems to me that if it suits them they can take it on face value and chose to ignore the rest.
I am having a weird reaction to the florinef, my MG symptoms that had almost disappeared have come back. I am having daily ptosis ( I was anyway but this is getting very noticeable) so my eyes looked like they are half closed. Yesterday I felt like I couldn't breathe and ended up using oxygen and taking mestinon. I am paying the price today as my stomach is really complaining. The good news is that I responded to the mestinon and within an hour my breathing was back to normal.
My husband popped his head around the bedroom door and said "I can't remember the last time I saw your eyes that wide open!".
I am very tired today and my eyes are drooping as I type this. I will avoid the mestinon though as it wreaks havoc with my intestines. Unless I have trouble breathing again.
Sorry you are going through such a tough time
Rach
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