Thread: Just wondering what you would do?
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Old 03-31-2011, 09:33 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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I figured it like this:

Chances of MS? Roughly 1 in 75,000 (in Canada). (*That's a very rough estimate).

I have MS.

Chances of PML from Tysabri? 1 in 1,000.

For having a disease for approximately 8 years now (going by my neurologist's best guess) and having sensory symptoms only.. Tysabri for me is not worth the risk, what so ever.

I'd go back to site reactions, muscle spasms, bed wetting and horrific nightmares on Copaxone before Tysabri ever crossed my radar.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
Last edited by dmplaura; 03-31-2011 at 09:43 PM. Reason: I made boo boo, thanks Erin!
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