I'm so sorry to hear that Ali is going thru such hard times. I will keep her in my thoughts and prayers.
I would definitly run medical tests on this issue but I can tell you that I have had numbness in my right toes. I couldn't feel them or move them and the cause was the rsd but I was medically tested to rule out other possibilities. After months of intensive physical therapy I was able to regain the movement and the feeling in the toes.
The rsd pain in the limb while it is numb does sound possible as it reminds me of the phantom limb pain experience as even though the limb is gone the person still feels as if the limb is still there.
I wish I could offer more help as my heart goes out to you and Ali.

Xoxoxo
Sarah