On April 6 I get to see a neuro @ JH.

A brief history of my PN experience: Very powerful chemo in 1999 left me wheelchair bound for a year. Improved and switched to using a cane for a few years until a broken ankle did me in. Since the fracture, I've had worsening leg weakness, pain, numbness, etc.

For 12 years I have not had a definitive dx. Most docs I've seen believe it's PN but the chief neuro @ Sloan Kettering says it's Fibro. My rheumy says it's not. But no one says it 's something else plus PN mixed in, ie, autoimmune which is my hunch based upon elevated ANA levels & sed rates.

Needless to say, this trip to JH is a major undertaking and I want to make the most of it. I know there are knowledgeable people here and I'm hoping you can point me in the right direction.