View Single Post
Old 04-03-2011, 05:18 PM
MegansMom MegansMom is offline
New Member
 
Join Date: Apr 2011
Location: central Florida
Posts: 5
10 yr Member
MegansMom MegansMom is offline
New Member
 
Join Date: Apr 2011
Location: central Florida
Posts: 5
10 yr Member
Default My daughter

My daughter Megan was diagnosed with MS LAST August. Her symptoms had started a few months prior but the number of symptoms and their severity was increasing.

She had severe fatigue, some cognitive issues, cold blotchy ( numb at times) legs/ feet, heat intolerance, headaches, vision impairment, electrical shocks down both arms, expressive aphasia that came and left, balance issues, stamina issues, and more.

She was diagnosed with CCSVI in Sept 2010 and on the table her body got intensely warm and her numbness left. Over the next hours and days most of her symptoms left, the expressive aphasia took 3 months but has gone too. She no longer has any symptoms, except her pinkies occasionally are numb upon arising and then it abates.

They venoplastied her Azygos vein that drains the spine and it had 2 twists called candy wrapper twists, causing her blood to reroute to get back to her heart /lung for fresh oxygen. Causing a delay and hypoperfusion. She also had a partial blockage of her Left internal jugular vein. Both were ballooned, neither was stented. She is now 6 months post venoplasty and still symptom free.

Just rescently she had an MRI and her lesions are all smaller. All of her symptoms are gone.

Now I am not sure everyone would benefit but I don't know why the neurologists are not wanting to get the clinical trials done on CCSVI angioplasty. This s the best thing that's come along ever. I am an RN that had some cardiovascular knowledge and I knew her risks were low.

So many have their numbness and cold limbs improve.

Please investigate this as an option and get tested.
MegansMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (04-03-2011)