Thanks, Anne! There are other influences . . .strep, then the flare started, and then my dad died all in December as well as having several major changes happen all within a year. So the combination of everything certain could be a contributing factor to the loss of weight.

Generally, when I get the hug I lose my appetite. They did up my Neurontin by 300 mg for the hug, numbness, and loss of sensation of hot/cold in my arms and hands but I reacted badly to it and we dropped it back down to the normal dose. It is hard to decipher what is what and I think it is a combination of things. As of now, my dr wants to just wait and see and is helping me get my body back on track and in balance from both the flare and Neurontin reaction (once I dropped my dose back down, I started doing better). Most of the physical things related to the flare have calmed down and I am back to a new normal.

As I mentioned, my 1st major flare I lost quite a bit of weight too and I was just curious what others have experienced. In 5 years, this past flare was the 2nd to worst I have ever had and the longest in regards to symptoms. (Again, I totally don't discount stress, grief and anxiety over such as being part of the mix and have been going to a wonderful counselor for the past several months.)