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Old 04-04-2011, 07:54 AM
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legzzalot legzzalot is offline
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Join Date: Nov 2008
Location: Fredericksburg, VA
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15 yr Member
legzzalot legzzalot is offline
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legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
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I can say that I have a good neuro. She is open to all ideas I bring her and she is trying hard to treat my symptoms. We have discussed several options including CCSVI.

Her opinion is... she has read the studies, and she can see improvements made for people who have more brain lesions than spinal. She has looked at my veins and does not see any narrowing or blockage. My lesions are mostly in my spine and she doesn't think I would benefit from it.

She does believe I would benefit greatly from stem cell treatments if done properly, but it is not an available procedure that I can easily get. She is also hopeful for the SK drug that is in the final testing phases and may be available in the next couple of years. This is the sea anemone peptide complex that I have been following. When I asked her about it the first time, she honestly had not heard of it, so I emailed her the information I had and the contact number for the Dr in charge of the study in California. She contacted him and followed up on the information and she makes sure I am aware of any new developments such as human testing.

I think it all depends on the doctor. There are some who are in it only to make money and there are some who have a true desire to help others, or who have had experiences in their own lives that allow them to see the true effects of this disease. Neuro's mom has Lupus. This makes her more sympathetic than my last neuro.

I don't think every treatment is right for everybody, if it were, we would all have the same symptoms and lesions. I think you need to find what works best for you. If your neuro isn't open to new ideas, or doesn't want to listen when you speak, then it is time to find a new doctor.
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