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Old 04-04-2011, 11:30 AM
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SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
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Quote:
Originally Posted by MegansMom View Post
Why is there no mention of CCSVI on this website ? I came here to exchange info about CCSVI (chronic cerebrospinal venous insufficiency) and I am shockedvthat it's not even mentioned. Not even news about the clinical trials or new pinned studies....Nothing?!
You sure didn't look very far, did you?

We have 3 members here and another friend of mine, who have had the procedure and talk highly of it. It is helpful to some, but certainly not a cure.

I'm still one of the waiters, but I wouldn't hesitate to have this procedure, if I thought it would help me. So far I've heard 3 different result stories..1. It helps a bunch - 2. It helps some - 3. I didn't work, I'll have t do it again.

What I haven't heard...yet... is, I'M CURED.

Your dear daughter's amazing story could be the one that convinces me to get tested, so please stay with us and keep us informed and thank you..
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