Although I'm not sure how you can better describe your symptoms- as I feel that you have been plenty descriptive enough here in your post, I can say that I do hope that you're able to be seen by a DR who knows how to investigate further. Pls try to get a second opinion from another Vascular DR. I too, know how it feels to see someone whom is "highly rated" or the director of the vascular Dept- I almost began to wonder if you're from AZ!! I saw the highly rated vascular surgeon here at UMC/UofA and he turned me away with a possible "allergic reaction to lotion" and it was "100% not a vascular issue" when my left arm/hand swells and turns red- because I have never been DX'd with a clot nor did I have one at that point. REALLY.

Anyway, fast forward to new DR- have arterial TOS and I have surgery scheduled for next week. Amazing.

it took me to narrow down my symptoms according to the particular specialist I was seeing. I would pretty much make two lists, one highlighting my symptoms according to the specialist (neuo symptoms for neuro, vascular symptoms for vascular Dr, ect.) and then a second list with all other symptoms. IF you find a DR willing to listen and PAY attention to your first list, then hit them with the second list.

Also, maybe look into internal medicine? They have a whole/total patient concept- might work for you. Sometimes, DRs are too close to the forest to see the trees, keep looking for other opinions- you will find the answers that you're looking for.

Don't hesitate to go to the Dr/hospital ASAP though, when your symptoms are getting out of control/out of the norm. You may be playing with fire. Also, not that I advocate patients going to the ER- but that right there could be the key to getting an appropriate work up right away! Bear in mind, you will get poked and prodded and tested up the wazooo- but who here hasn't anyway! With your symptoms, you are almost 100% sure to get a substantial ER workup!!

Chin up, we are here for you!!