View Single Post
Old 04-05-2011, 10:20 AM
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
15 yr Member
Default

I'm assuming you meant that your first operation was December of 2010, not 2011?

When exactly did you have the total replacement?

A solid diagnosis can be difficult and oftentimes takes time and the opinion of many professionals. It is usually a "diagnosis of exclusion", meaning that every possible other root cause is ruled out. I saw 6 doctors and 2 physical therapists, and had countless imaging tests performed before we had a solid grip on my diagnosis.

As for symptoms, it is very individual. You do not need all of the "common symptoms" of CRPS to have CRPS.

Not sure how your health care works, but is it possible to get a neurologist or another orthopedic surgeon to give you an exam? The more looks you get the better, as CRPS can be underdiagnosed or even overdiagnosed (when it is something else)

If you just had the total knee replacement not that long ago, I sure think that there is a "possibility" that what you are experiencing may be related to your recent surgeries, and may not be CRPS. This is where it gets tricky though and where second, third, and fourth opinions are valuable.

I am in need of a partial knee replacement, but because of the CRPS in my right foot, I'm holding out as long as I can. So when the time comes, it will probably be a total replacement, which is okay as then I won't have to worry about a revision.

As for your pain, it is such an individual strategy, as what works for one won't work for another. Lots of trial and error. I was addicted to Percocet after taking it for a year. Weaned myself off of it finally and no take no narcotics, but do take nerve drugs and other pain medications.

Being referred to a pain specialist is a VERY GOOD thing. They oftentimes can help, where orthopedic doctors struggle. And it would be interesting if you were to try a drug commonly used to treat CRPS (like neurontin) to see if you have a positive reaction to it; that would give you another good data point in figuring this thing out.

Good luck and keep us posted!
birchlake is offline   Reply With QuoteReply With Quote