 |
Senior Member
|
|
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
|
|
|
Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
|
reaching the unreachable
While the internet is connecting and informing more people fast and effectively, there still are huge gaps in disseminating important information to the people that need it. Great swaths of both patients and doctors (general practitioners and neurologists) are unaware that there are specialists in Parkinson's disease, so the referral is never made - and patients' health and lifestyle suffers needlessly. We should all do our part to spread the word about Movement Disorder Specialists - but the problem still remains of reaching the unreachable. (This is true for clinical trials participation as well.)
What is the answer? I know MJFF is sorting through the ideas. Would the concept of one national source for all PD information (a clearinghouse of sorts) be reasonable?
__________________
Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
|