Gosh, even with that good news I find myself tearful again today. But I am so worn and I think kinda scared from my worse breathing that I cant really cry out loud, in full. I have been trying to make some calls this morn after the day of silence yesterday and already my chest muscles are saying stop. I went down the half flight of stairs to get mail rather than wait for my aid that comes at 1pm and now it is worse.

As of Sunday I noticed new symptoms that I am sure are to do with the digestive issue. While fluids not going right thru me as they have now my ankles are very swollen and last nite I found this included my legs to from kneees down. If it werent so hard to pull off pants and ck full legs it may be more. I noticed I was feeling like more fluids were in my body Sunday after the IV fluids. I literally didnt have to push water for several hours! I noticed first at the hosp I didnt pee like I ususally do. Not peeing near as much is still true. Also in 24 hours my mestinon tolerance changed it seemed. I went from higher levels to bad diareah yesterday from minimal. Tho minimal doses were part of what had changed with the beginnning of the digestive problem. I never had it shift that fast.

I am at a loss. I dont know what doctor to ask to get me over to the gastro doc asap. My daughter is so busy this week and works so hard even hardern now with the move thing. NOw she has to go see my housing worker as she refused to recalculate my housign voucher tho she nows full well I never was able to get all the uncovered medical stuff verifed for this past 12 months. MY last worker was far more understanding of my disability.

Annie59

Thanks everyone for listening.