tbirdowner,
I just caught myself up on the history of your twins. I'm so glad things are looking up and going in the right direction. I am also SO glad to hear that you are getting the services you need and deserve. I wanted to share a bit about my own experience (from my parents' recollection) as an infant with Hydrocephalus. I, too, had a big head and lagging development. I had to "grow into" my head, just as Thomas will. My parents said that by the time I was two I was walking and was just about caught up in development. My point isn't to say that by the time he is 2, Thomas will be caught up, but to say that it varies but that he WILL catch up, on his own unique timeline. I am know 26 and you would never be able to tell that I have hydrocephalus, unless you felt my head
I hope things continue to progress well for your boys. Keep advocating for your needs and your boys' needs. I have learned that advocating for my medical needs is going to be a lifelong necessity!